A Guide for the Haemoglobinopathy nurse

Authors : Edith Aimiuwu , Aldine Thomas , Naseer Roheemun ,
Edition :
Year : 2012
Description :

The nurse plays a vital role in the care of patients with sickle cell and thalassaemia. There is hardly an intervention, treatment or care programme in which the nurse does not play a significant part. It is therefore of the utmost importance to have a nursing service that is integrated, seamless and suitable for patients in both the acute and community setting, irrespective of what part of the world they are in.
This book is the first of its kind-guidelines for the care of patients with sickle cell or thalassaemia, written by and for nurses. The information provided here has been care- fully compiled by specialist nurses experienced in the care of patients with haemoglobinopathies, including blood transfusion, iron overload, screening, pain management and counselling. It is the aim of this book to help nurses everywhere to ensure the provision of quality care for all their patients with sickle cell or thalassaemia.
These guidelines have been produced under the auspices of the Thalassaemia International Federation (TIF), which works to promote awareness of the haemoglobinopathies, particularly thalassaemia, and to give prominence to the views of patients and their families. TIF’s goal is to ensure the equal rights of all patients everywhere to high quality care, by disseminating the knowledge, experience and expertise gained from countries with successful control and treatment programmes to areas where it is most needed.
Haemoglobinopathies such as sickle cell and thalassaemia affect patients’ lives and the lives of their families in different ways. In addition to physical symptoms, they must cope with feelings of anxiety, guilt and fear of the unknown. Nurses play a vital role in helping patients and their families manage all these aspects of disease.
Nurses are also essential in helping patients to become experts in their own condition, teaching effective techniques for self-management, the prevention of complications and the transition of paediatric patients to the adult team of healthcare specialists, as well as in genetic counselling.
I am confident that these guidelines will assist nurses all over the world in providing safe and effective services to patients with sickle cell and thalassaemia, enabling nurses to make the most of their unique skills and abilities in patient care.


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